Difference between revisions of "Patient Stories"
From Patient Determinants
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'''Mental Health''' <br> | '''Mental Health''' <br> | ||
| − | * [http://khn.org/news/saving-amanda-one-familys-struggle-to-deal-with-a-daughters-mental-illness/ Pam and Doug struggle to find care for their young daughter Amanda who is eventually diagnosed with bipolar. Finding available psychiatrist, psychiatric hospital beds and programs were difficult. (3/14/16). | + | * [http://khn.org/news/saving-amanda-one-familys-struggle-to-deal-with-a-daughters-mental-illness/ Pam and Doug struggle to find care for their young daughter Amanda who is eventually diagnosed with bipolar. Finding available psychiatrist, psychiatric hospital beds and programs were difficult. (3/14/16).] |
'''Patient Goals''' | '''Patient Goals''' | ||
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'''Primary Care Physicians - Managing Health'''<br> | '''Primary Care Physicians - Managing Health'''<br> | ||
* [http://www.kevinmd.com/blog/2014/03/primary-care-importance-doctor.html Patient went to Urgent Care rather than Primary Care Physician that knows her, costing almost $10,000 that was unnecessary (3/14/14)] | * [http://www.kevinmd.com/blog/2014/03/primary-care-importance-doctor.html Patient went to Urgent Care rather than Primary Care Physician that knows her, costing almost $10,000 that was unnecessary (3/14/14)] | ||
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| + | '''Shared Decision Making''' | ||
| + | * [ http://www.kevinmd.com/blog/2016/03/shared-decision-making-still-exception-not-rule.html Joe is a healthy 85-year-old on just one medicine. His doctors office ordered an unnecessary medicine without a discussion. (3/25/16)] | ||
Revision as of 15:20, 29 August 2016
To truly understand managing health, we need to hear first hand from patients to relate, emphathize and learn how to improve.
Addressing Non-Medical Determinants
- 78-year-old businessman with physical pain needed to address emotional needs first (5/17/14)
- Mr. Jones had congestive heart failure, COPD, and a barrage of other chronic health problems. A visit to his home provided insight into why he was going to the ER each week (5/21/15)
- 39-year-old woman that is nearly blind and unable to walk more than a step or two, struggles to raise three sons while dealing with a daunting array of health conditions from diabetes to pain from bulging spinal disks. A non medical health worker offers to help. (3/9/16)
- A Physician tells a story of how social determinants drive patient outcomes in two men in their late 30s that live across the street from one another, both in good health with no family history of major illness (8/7/16)
Behavior
Caregivers
- When a family caregiver becomes injured, she learns the difficulties—and costs—of caring for herself and her chronically ill husband at the same time. (9/2014)
- A son must decide between caring for his elderly mother or being able to retire one day
- Six short videos, each just 3 minutes or less, show what caregiving looks like. (1/2/16)
End of Life
- A patient dying of cancer was denied home treatment that would have improved her quality of life over her last few days and saved tens of thousands of dollars. (2/11/13)
- A frail, 94-year old women with with advanced Alzheimer’s has hip fracture surgery during her dying days due to poor communications (3/10/13)
- A hospital CEO learns that the standard of care isn't always appropriate when her 94 mother sustained a fall
Health Insurance Issues
- A patient suffering from an infected artificial shoulder couldn't afford intravenous antibiotics three times a day for six weeks in home. Medicare spent an unnecessary $30,000 on hospitalization and care rather than reimbursing for home care. (2/23/13)
- Medicare would only pay for an 84-year-old man's infusion therapy at a nursing home ($15,000) rather than at his home ($1,200). (2/23/14)
- A man suffers for a week in agony with kidney stones because of insurance access issues to physicians and services (12/11/15)
- A young professional woman a few years out of graduate school in late twenties with a good job and health insurance unable to manintain her health due to cost and coverage. (6/29/16)
High-Need, High-Cost Patients
- Rebecca Bryson has 10 different medical conditions and depends on 13 health care providers. Her life improved when a program funded a Clinical Care Specialist and the creation of a Shared Care Plan.
- Forty-year-old Jeremie Seals was assigned a care manager and a regular physician that helped reduced his 15 ER visits and 11 hospitals stays to 4 ER visits and 4 hospitals stays the following year. (7/10/13)
- Virginia Hunt's story illustrates the effectiveness and ineffectiveness of our healthcare system that addresses conditions and often lacks capability to treat the overall patient. (3/3/13)
Living With Chronic Conditions
- Chronic Pain - The frustrations of 70 year old woman going from a vibrant lifestyle to be consumed by pain with no solutions other than suffering and addicting opioids. (7/3/16)
- Disability from Stroke - 32-year-old Jamie Hancock, mother of children ages 1 and 3 had to adjust to a new life (8/24/16)
- Alcoholism - A man, sober for one year, struggles with his life and love for alcohol (8/24/16)
Medical Decisions - Quality of Life vs. Aggressive Interventions
- 70-year-old male with deteriorating congestive heart failure. Costly, aggressive route, could have caused more harm than good, comprising quality of life. (9/20/14)
- Vibrant 68-year-old woman from Haiti. She was always impeccably dressed, loved to talk, and had an incredibly infectious laugh. While the condition was cured, she was not. (6/6/16)
Mental Health
Patient Goals
- A doctor discovers an important question patients should be asked. “What are their goals?” (3/9/15)
- Patients become people through their social history (8/26/15)
Primary Care Physicians - Managing Health
Shared Decision Making
- [ http://www.kevinmd.com/blog/2016/03/shared-decision-making-still-exception-not-rule.html Joe is a healthy 85-year-old on just one medicine. His doctors office ordered an unnecessary medicine without a discussion. (3/25/16)]
